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 Post subject: Relief from RLS
PostPosted: Wed Jun 26, 2013 8:35 am 
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I wanted to post this here for everyone to read because I know alot of us are dealing with this right now.

I have had RLS my entire adult life, and during WD it is intensified about 100%. While I was on a higher dose of suboxone I didn't have ANY problems with it, but since I got down below .5mg it has come back with a vengeance. And in fact, it's really what I'm worried about most when I jump.

OK, to the point. I recently found an old script I had for Requip. I had taken this before with just a little success, but I figured I would give it a try again. Now, I'm not saying it has erased my RLS completely, but it has definitely made it much more bearable. This medicine is a mainstay in RLS treatment, and it has NO side effects that I'm aware of. It's non addictive, and can even be taken during the day if you are like me and find the symptoms persist. The generic name for it is Ropinirole. I believe they start you out on a .25mg dose, but I find best results with .50mg.

Hope this helps someone else out there!

Q


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 Post subject: Great Information
PostPosted: Wed Jun 26, 2013 12:23 pm 
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Thank You very much for posting about Requip. I have mentioned it several times over the years but it seems no one takes notice. It really should be put on our list of comfort meds to have when someone wants to jump off.

My wife has also suffered from RLS all her life. Not until this new drug came out years ago was it recognized as a real disorder. Every Dr. she saw since her childhood all said it was in her head. Her father had it and drank heavily at night to get to sleep. Unfortunately, the Requip makes her so sleepy she won't use it. What does she use? Hydrocodone. That is because RLS is a distant cousin of Parkinson's. Opiates seem to calm that part of the brain so it works for her.

Now that it is recognized as a real disorder a specialist said she has the worse case she has ever seen. Some days she can feel it in her arms too. For now she will continue with hydro to calm it down until they come up with something that doesn't knock her out at 8 PM.

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PostPosted: Wed Jun 26, 2013 4:08 pm 
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Thanks for posting that Q.

I wondered during my wd if Requip would help with the RLS, but I never did pursue it.....wish I would have.

Rule, I think you're right. Suggesting Requip as an option to help with RLS during wd is a good idea. RLS has to be one of the most common and disturbing components of opiate wd.

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PostPosted: Wed Jun 26, 2013 5:55 pm 
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Nah requip is not good for RLS from opiate withdrawal, especially bup withdrawals, because requip was not made for opiate related RLS and second of all it gives rebound RLS, so you really do not want to be feel the side affects from requip during sub withdrawals and PAWS. I read too many people suffer from requip with rebound insomnia/RLS and for many people it just does not work..

It is also dangerous and I believe they are taking ropinirole or requip off the market? or the very least doctors are hasitant in prescribing them.


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PostPosted: Wed Jun 26, 2013 6:07 pm 
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I just read that a possible side effect of Ropinirole is increased sexual urges and gambling addiction. Sounds like a medication that should not be prescribed in Las Vegas. :D


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PostPosted: Wed Jun 26, 2013 6:10 pm 
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Icaras wrote:
Nah requip is not good for RLS from opiate withdrawal, especially bup withdrawals, because requip was not made for opiate related RLS and second of all it gives rebound RLS, so you really do not want to be feel the side affects from requip during sub withdrawals and PAWS. I read too many people suffer from requip with rebound insomnia/RLS and for many people it just does not work..

It is also dangerous and I believe they are taking ropinirole or requip off the market? or the very least doctors are hasitant in prescribing them.


I'm not sure what you are referring to. I've never had any doctor bat an eye about prescribing it and I don't get rebound RLS at all. When I'm not in WD I might have to use it 3 or 4 times per month. The past 3 or 4 days I have taken it every night and during the day on two seperate occasions. I don't get sleepy from it either, maybe some people are more sensitive to it than others? It works pretty good for me...just a suggestion for anyone else suffering through this crap.

Rule, I get the RLS in my arms too. That has got to be the worst feeling in the world! I can definitely relate to your wife's struggles. That made me LOL when you said she takes hydrocodone for her RLS. I used to do the same thing, and it worked for me too. Of course I also took them when I had a backache, or a headache, or was feeling like I was catching a cold, or if I bumped my elbow on a door, or if I stubbed my toe...and if none of those things happened that day I would pick a fight with my husband so I could take some to calm down. :D


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PostPosted: Wed Jun 26, 2013 6:27 pm 
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Nah!

So many people have tried requip and other RLS meds such as Mirapex and you rarely see anybody who claims it helps, infact almost everybody complains ir makes RLS much much much worse.. If it does help even a little bit it tends to stop working soon enough and people are left to deal with the side-affects. If you google around you'll see many dangerous affects from requip hence why many doctors stopped prescribing them.

Also RLS can stay for a long while, the minimum for many folks is 6 months, (long term sub users), so you really cannot use requip for that long or nobody can, because of the side-affects and rebound RLS, but for majority of people they do not work for opiate/bup related RLS..

My plan at the moment is to use SAOs for 8 months, to purge out the bup, I got enough stash to last me 2 years. This seems to be 1 method that can work with discipline and commitment. Sadly not everybody has the money, the stock or discipline to use SAOs to get past WDs and PAWS. Another doctor said why feel bad for so long when you can use something like SAO to help you feel semi-comfortable when your riding out sub PAWS/WDs. It is not beyond the realms of possibility to make this work, but am talking about myself here, my method and my aim, am not telling anybody elsr to do this, but just what may work for me..

I been on sub for 6 years now and it will take a miracle for me to have less PAWS, at the moment I do not trust a taper to make any significant impact to lessen WDs and PAWS, though am going to carry on tapering, then transition to SAOs to give me the best chance, or even perhaps do rapid detox or Iboga... I cannot go through PAWS for a year or 2, I have to work, be social, active and basically get on with life..You cannot exercise in withdrawals, and even if you can during PAWS it does not make much difference for the long run unless you are a year 16 months away from bup and do vigorous exercise.

Good luck in whatever you decide to do folks.


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