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PostPosted: Fri Aug 11, 2017 11:16 pm 
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After trying everything else possible via my rhuematologist- including a series of pain medications via a pain management specialist- Suboxone finally gave me some relief from the awful core body pain I had been experiencing. I tried to get off of 12mg/day a few months ago- very slowly- and my body went into shock days 9-11 with no Suboxone. To make a long story short, I am back on 8mg/day now.... but am terrified that I just can't get off of it. It was a living nightmare with this last attempt to get off of it... Has anyone out there been prescribed Suboxone for lupus pain? If so, are you still on it/or, how did you get off of it? Thank you, Laura.


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PostPosted: Sun Aug 13, 2017 12:12 am 
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You don't need to be afraid of getting off suboxone. The only thing you have to do is be willing to slow down and taper patiently. Yes, if you jump suddenly from 12mg it's not going to go well! You need to develop a solid tapering plan to follow. It can be done! :)

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PostPosted: Mon Aug 14, 2017 3:25 pm 
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Many (maybe most) of my patients started out as pain patients. Becoming addicted, going through treatment and then ending up on Suboxone. Medically, nothing has changed, they still have whatever took them in to be treated.
Function often seems to improve with Suboxone, so long term management is possible. I don't use pain scales, but are you more active, is your life better as measures of success.
For whatever reason, once on Suboxone the adjunctive treatments often seem to work better as well.
If you are getting relief, better than anything else, consider staying on Suboxone. If you are able to taper low enough then could transition to the pain management products for Buprenorphine, Butrans or Belbuca. These both deliver steady state Buprenorphine but at much lower doses than we use for treating addiction.
PAX


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PostPosted: Mon Aug 14, 2017 4:39 pm 
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hi Laura I have had 4 back surgeries plus I have Fibrosis and osteoarthritis. No I don't have Lupus but I have pain which has been helped by Suboxone. I was goi g to go off because of my family but, I will b on as long as I have pain. I refuse to go back on opiates. Why do u want to come off. If u don't want to answer that I understand ur privacy it is only ur business . I'm 66 and I believe this is a great site I enjoy the honesty here . I hope u get the answers u need. I will say a prayer. Best of luck ... oldgrammie


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