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 Post subject: Joint Pain!
PostPosted: Sat Oct 27, 2012 4:16 pm 
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I've been on Subutex for about 2 months now and I'm having the most god awful joint pain. Especially my neck. I wake up in pain every morning! This is completely new to me and started a few weeks into the subutex. Anyone else get this?? If so, have you found anything that helps? Thanks!


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PostPosted: Sat Oct 27, 2012 9:36 pm 
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I definitely feel ya on the Joint pain!!!!!!!

not so much my neck, but just about every other freaking one, seems worse in the 'cold' months, too.
My knees, shoulders are probably the worst, in my case.

Every day I wake up in the EARLY morning, and take about 800mg of Motrin........ that seems to help more
than anything else!!! On the real bad days,,,, tyelenol is added in, and my doctor perscribed me a muscle relaxer
"flexiril'' well, the generic.......
that helps SOMEWHAT.............. All these things help a little ,,, so added together, they help alot.

you might ask your dr. about taking something for it,,,,,,
they may have a better idea of what would help you, plus its a GOOD idea to make sure there's no underlying
problems.............something ELSE could be going on,,, and the opiates could have been "masking" that,
it's def not an uncommon occurance.

Whatever you decide, I do hope you get some relief, sooner than later!!!!
but congrats on two whole months!!!!!
Im confident if you at least keep an open mind, you'll be able to FIND a cure
good luck!!!

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PostPosted: Sat Oct 27, 2012 11:26 pm 
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Assuming you're dosing once a day, it's probably no coincidence that you're feeling this pain in the morning. Does the pain go away after you have your Suboxone? Or is it constant through the day?


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PostPosted: Sun Oct 28, 2012 1:25 pm 
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Thanks for the replies!! I actually dose twice daily (every 12 hrs). And when I was using opiates I had times of sobriety without this pain. Its really weird and the only thing different is I'm taking subutex now. I'm glad I'm not the only one tho! I'll ask my doctor about it too. It does let up some during the day. Who knows.... Maybe I'm getting old ;(


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PostPosted: Sun Oct 28, 2012 7:26 pm 
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Nahh you're not alone with this side-effect. There have been people dropping in here for a while with this problem. It's not one of the most common problems but we do get it from time to time. And it does make sense that a drug like buprenorphine would be involved. I suffered this problem notoriously badly while on methadone. It just made my joints feel old and achy. It was an "overall" feeling, and it does kinda make sense. And what's interesting was it improved when I reduced my dose, which is a bit counter-intuitive.

I read somewhere that our natural opioids - our endorphins - act as a natural painkiller. Without endorphins we experience pain even in the absence of injury, because our bodies are constantly experiencing low level pain from muscle and joint wear and tear. Our body's natural endorphins just mask that pain. However, when we're in withdrawal from opioids, we have no endorphins and our receptors are extremely dependent on high levels of opioids, that pain surfaces in the form of muscle and joint aches. Kinda why while in withdrawal we can feel pain from injuries that healed a long time ago.

It may be that your body is slightly unique, and that being stabilised and tolerant on buprenorphine isn't giving you enough of that low-level analgesia to cover up these "life pains?" The two things I'd experiment with would be trialling a dose reduction and seeing if it gets better or worse. If it gets worse, then trial a dose increase and see if it gets better or worse.

Good luck!


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 Post subject: Ha ha
PostPosted: Sun Oct 28, 2012 10:30 pm 
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We are all getting old. Each day. Hope you are able to resolve this issue. Update us on your progress...


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PostPosted: Tue Oct 30, 2012 2:00 pm 
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Thank you so much TeeJay! I will definitely adjust my dose a bit and see if I can notice a difference. My doctor has already told me I can increase or decrease, if needed. I'm at a very low dose to begin with, so what you've said makes perfect sense. It is similar to the pain during withdrawals (yuck). I appreciate your knowledge and feedback. It means alot!


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PostPosted: Tue Oct 30, 2012 8:53 pm 
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Just be wary of "dose-creep". I know for me, after I stay on any dose of Suboxone, after a while I start getting mild withdrawal symptoms before I take my next dose. When it happens, it's easy to want to raise the dose. I'm unsure though if the process ever stops. I know some people on subsux speak of this "dose creep" phenomenon with their dose eventually getting raelly high.


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PostPosted: Tue Oct 30, 2012 9:20 pm 
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I definitely suffered a bit with joint pain when I was on 16 mg/day. I have been tapering since then and it went away at about 6 - 8 mg/day. Now I don't have any joint pain unless I overdo it. I used to notice the joint pain whenever I got out of bed, got out of the car, or climbed stairs. For me it was a relatively minor annoyance compared to the benefit I was getting from sub.

Amy

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 Post subject: Joint Pain and Suboxone
PostPosted: Mon Nov 12, 2012 11:52 am 
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Hi everyone! I am new to the site, but I wanted to take the opportunity to tell everyone my story. I really hope this helps some people that are experiencing or will experience what I went through. Be patient, it may be long.

First of all, I decided to go on Suboxone after a long addiction to pain medications after a car accident. I have a wonderful doctor who tried desperately to get me off the pain meds, but it just kept coming back when I had to have knee surgery, a c-section, etc. The day I took 20 pills, I decided I have had enough....I have 3 children who need me!! And I was tired of being dictated by a pill.

So I went on suboxone thru a psychiatrist. I know there are people that lives have been saved with suboxone, so please don't think I am bashing it. I just happened to have a bad experience.

I was on suboxone for a year and a half. The first 2 months I fought with severe nausea to the point I would have to pull my car over to vomit. It subsided after awhile. After the first month, my ankles started hurting...then my knees. I went to an Ortho doctor who took x-rays and found nothing. They did a blood-test for RA (Rheumatoid Arthritis). Apparently RA usually hits in the same joint on both sides of your body. Anyhow...I got a call a few days later stating I tested positive. I then went to an Arthritis specialist. She told me I did not have it. Apparently the blood-work had been misread? Who knows. By that point, the joint pain had moved from my ankles and knees to my right elbow and my thumbs. I lost all strength in my hands. Many dr appts later and no answers I was barely able to get out of bed. I thought I was going to need permanent care by the time I hit 45! My depression was awful. I barely got out of bed. I didn't want to go anywhere bc I hurt too bad. I didn't even have the energy or strength to take care of my son. One day, he wanted me to push him on his swing. I couldn't do it! My hands were so weak....I tried to push with my elbows...anything to make my son happy! The pain was too severe. I cried and cried that I couldn't even push my kid on the swing!!! I can't even explain how bad the joint pain was. It got so severe that I would wake up and I couldn't straighten my fingers. It felt like you were ripping tendons if you tried!

Also, the time I was on suboxone, I gained 65 lbs!!!! I barely ate, but I gained and gained!!!

FINALLY....one day I googled Suboxone and Joint pain. It was a bittersweet moment for me. Thread after thread were stories from people telling the exact same things that have happened to me. Sweet bc now I knew I could get out from under this! Bitter bc I felt angry and betrayed. Betrayed that my doctor that prescribed it to me didn't tell me it could be the suboxone! All those visits and talks about what I had been suffering through and you can't mention it may be the Subs???? :evil:

I will also tell you that I went into a severe depression. I know that my depression was compounded by the subs. When I say deep depression, I mean deep. I barely showered!! I started seeing a psychologist....he is wonderful and helped me thru a lot. (I have had great loss over the past 4 years....my nephew died at 14, his mother committed suicide 2 years later, i lost my mother(15yrs ago), my step-father, my godfather and 2 dogs. I gave up my toxic relationship with my father. To say I have been grieving is an understatement). :(

Going off subs....it took me about 3 months to go from 16mg a day to NOTHING. To all that are struggling going off subs, it can be done!!!! I did my research. I prepared myself emotionally and worked with my family physician regarding the side effects I could suffer. The worst part was the RLS (Restless leg syndrome). I took a medication called Requip and it helped immensely!! Then there was the hair loss. Day after day I would lose clumps of hair. I am very fortunate to have extremely thick hair. Well, I did before I started tapering!! I tapered myself down by how I was feeling. If I went down 2 mg and felt fine 4 days later, I would go down more. It is true that the worst part is the last 4 mgs. And you do take crumbs at the end.

FINALLY FREE.....I am 40 days off Suboxone! My joint pain is sporadic and tolerable. My doctor did help me with a low dose of steroids so I could function. Every day it gets better and better. My hair still comes out, but maybe 20% of what it was doing before. I FEEL LIKE A NEW PERSON. I grieve, but I am healthy!!!! My husband says its like night and day. :D I have a granddaughter thats 2 months old and I can hold her!
My life is back on track...I feel like I have woken from a long trance.

I hope this helps someone. If you have joint pain and are on subs....please don't wait to find out if it is the subs! There is always good and bad with any medication. But for me, it was worst being on the subs that made me hurt so bad when I was trying to stay off pain meds!!!!!!

Please feel free to message me. I have nothing to hide and want to help. Things can get better!!


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 Post subject:
PostPosted: Mon Nov 12, 2012 4:27 pm 
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Welcome to the forum! I'm sorry you went through so much pain and depression while taking sub!

I honestly believe that some people just react terribly to this medication. I hope that in the near future there are several more choices in maintenance medications so that if one doesn't work, maybe another one will.

I don't think that a lot of doctors know about this side effect. Not everyone experiences it and certainly not to the degree that it affected you. But I hope that if someone googles this topic they will find your story and know that they're not alone. Obviously if suboxone is doing you more harm than good, it's time to look for another solution.

So have you been off all opiate medications now? Sometimes after going off all of the medications you find that the pain is more manageable than you thought. Is that what you've experienced?

I hope you stick around! We need all sorts of perspectives here.

Amy

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PostPosted: Thu Jan 03, 2013 2:10 am 
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It depends because subotex do have side effects. It works on some cases not on all the cases. If you have started from two weeks than the results must be there. If still the pain persists try anything else.


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