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PostPosted: Thu Apr 28, 2016 1:40 pm 
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In 2009 I was about 24yo. I was put on Vicodin by my dr for some back pain I was having (turned out to have nearly every disc in my back & neck bulging.) In 2011 I was switched to percocet.
My body acts very strange to opiates. I get absolutely no head change whatsoever (no complaints here, it's just weird,) and my body gets use to opiates crazy fast. Since starting the V, I've been in a state of constant withdrawal, with waves of it better & worse throughout the day as I take my medicine. Yawns, body aches, extreme back pain, no energy, hot flashes, feeling like death, no will to live etc..

After about a year of the P, and my constant complaining about the withdrawals, my dr added 25mcg Fentanyl patches. After a few days, my body was use to it and I was right back to being in nearly constant w/d. Over the course of like a year he eventually bumped the patches up to 75mcg.
Then he added 60mg morphine extended release 3x a day. All of this and still absolutely no head change, and my body getting used to the medicine within just a few days.

I realized this dr had no idea what he was doing and I couldn't really go up any higher, so for many years I just dealt with it, trying to push for a referral to see a pain management specialist.

Last year my dr got in trouble and could no longer prescribe opiates, so all his patients who were on it were basically screwed. A month of fighting his office and my insurance I finally got to a pain management dr.

Although all her patients in the waiting room were clearly loaded to the max (literally nodding out in their chairs) she went crazy about what a high amount of medicine I was on and slowly started taking my meds. She pushes these spinal injections on every single patient, and when I refused (I had to sign a paper saying we wouldn't sue if I became paralyzed or died) she said she wouldn't write me any more prescriptions if I didn't get them.

As I explained in another post, my whole life, but especially after I had my son in 2005 I had really bad, debilitating IBS-D. The doctors ran a million tests and tried numerous treatments that didn't even help a little. I was like a prisoner in my own home. I could rarely leave the house, I'm 5' 7" and I got down to 98lbs, I couldn't really eat or drink anything, it was horrible. I missed so much of my kid's lives being in the bathroom almost 24/7. I would have, and ended up doing ANYTHING to have a normal stomach.
The day I started the percocet, my stomach has been perfect ever since. Being on some type of opiate is the only way I'll ever be able to go back to school and eventually get a job.

Since my husband started doing drugs and pills years ago, I've been totally anti-drug, so this being the ONLY thing that helps my stomach, is a total mind-f**k for me.

I really REALLY didn't want to do the spinal injections, and since my stomach is so stupid, getting off everything wasn't & isn't an option. So my husband talked me into going to the methadone clinic where he goes. Last summer we go, I explain everything with my doctor and pain dr, and they tell me I'm not a candidate because I'm being treated for pain.

Crushed, we come up with a new plan. Lying through our teeth. We go back the next week and I tell them how I actually do have a drug problem, I was too embarrassed and ashamed to admit it, I need help, I always run out of my prescriptions early, then I buy stuff off the street, and I also say I steal my cancer stricken grandpa's pills. They say they 'don't know what kind of salad I am,' and deny me AGAIN.

Not knowing what else to do, I went ahead with the injections. She's done more injections and taken my medicine down considerably in the last few months (now it's morphine 2x a day and the percocet.) I've been basically bedridden since last summer with this constant w/d I'm in. Everything's a struggle. Just changing the channel on the remote takes effort and a pep talk.
Everything's neglected, myself, my kids, the animals, the house, everything. I can't do anything, I haven't even folded clothes since September. I can only muster the life to shower maybe once a week now, when years ago it was every single day. I've got no help from anyone, everyone in my house is a lazy ass, and I don't even have the life in me to try to force them to help.

Years ago my husband was on Suboxone. He switched to the methadone clinic because Medi-cal would only cover it for 6 months and we had to also pay almost $100 a month just for the doctor visits.

I'd like to switch to the Suboxone b/c I think it would keep my stomach ok, and even if I were to fight and get accepted to the methadone clinic, I don't really want/need to go there anyways. Having to go there every single day, random drug tests, weekly counseling, some people need all that, but I don't. Last month the pain dr wrote me rx's for the next 2 months, so I've proven I can be trusted. Plus just the stigma of being on that stuff.. I just really don't want to go there unless I absolutely have to.

I'm to the point now where I'd rather be dead than have to feel like this for much longer. I'm not living, I'm barely surviving. The only way I get through the day is to do the 15min thing. Talk myself into just getting through the next 15 minutes. But I can't do it anymore.

I found several doctors in my area that can prescribe the Suboxone. I will have to pay almost $100 for the office visit, so I need to be sure I get accepted the first place I go.

Now my question is, what should I say to the doctor to pretty much guarantee I'll be accepted? Should I lie and go the 'oh I also get drugs on the street' route, or be honest?


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PostPosted: Thu Apr 28, 2016 2:12 pm 
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HI momabear
I am so sorry you have had so many years of this struggle. I am sure it is frustrating. I think if u went in and told them that u can't seem to get a level of med that keeps u out of withdrawal and have to keep raising your med would be a good start. Cause your body obviously gets dependent even if your head isn't effected like you said. Be honest and let them know how debilitating this is for you. That you are getting your scripts cut down and going through withdrawal everyday. That's what I would do. Idk what else other than being honest about the high amounts you have been on and the terrible withdrawal you are experiencing everyday. That is miserable. I feel for ya. I can't handle withdrawal. I understand all those feelings you are having. I'm sure other members will be here to add to what I have said. But I definitely would give a sub Dr a try.

Willow


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PostPosted: Thu Apr 28, 2016 4:45 pm 
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Thank you for reading my whole story, sorry it's so long. Also thank you for responding so quickly.

Seems like it's going to be tricky just trying to find a doctor that accepts new patients :/


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PostPosted: Thu Apr 28, 2016 6:19 pm 
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No need to be sorry about the long post. That's how we get to know you! Yes, it can be hard to find a Dr. Just keep calling. You will find one eventually. Hopefully soon. Don't give up. It's definitely worth it. You are worth it!!

Willow


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PostPosted: Thu Apr 28, 2016 11:22 pm 
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Hey MB84,

I read your other thread asking if bup helps w stomach issues as well as this post.

Thinking of your wds, I wonder if you are a rapid metabolizer? CYP2D6 isoenzyme metabolizes 25-30% of all clinically used medications including opiates. Not sure if you have insurance - most now cover this lab test. One of our respected posters Teejay, is a rapid metabolizer, I believe.

For the sake of redundancy... and not asking you to answer here, but to think about...

It sounds like going on bup would primarily be to slow your gut... who are you now seeing for your chronic runs? Given your gut responds to opiates, how does it respond to OTC loperamide which affects the guts opiate receptors? Any experience w the newer IBS-D meds? I assume you've had upper/lower scopes with biopsies for celiac or types of colitis? Any experience w a pill camera endoscopy? It captures images all along the 20' - 25' of small/large colon vs only the area an upper/lower scope can reach. I ask about more investigation bc you are so young and w significant diarrhea, malabsorption and malnutrition can result in serious illness and cause you to feel pretty crumby.

Pain mngt MD's often are injection only or if they do prescribe meds, is often only if treated w injections as well. Did the injections help your back? Trying to understand what level of pain control you will want/need from bup.

Willow is spot on. In my case, I got addicted for pain - went from vikes to hi-dose fentanly for 10yrs. After 30 day rehab, I was still sick, could not do abstinence only and choose to get on bup. I explained I got addicted to prescribed pain meds and would surely relapse wo bup. It was no problem to get on it. So glad I did. I'm a few yrs off now and so very grateful for my time on bup.

I really feel for you. You've really had a time of it. Long term severe chronic illness wrecks havoc on you and stops the life you wish to provide for yourself and those you love. MB84, Wishing you my very best, P

_________________
Did well on Suboxone. Stopped May 2011.
Stopping went well -- its the staying stopped -- where the real work begins.
Coming here 'keeps recovery green'.


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PostPosted: Fri Apr 29, 2016 10:30 am 
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Rapid metabolizer- I bet that's exactly what I've got going on. Anytime I'd bring it up to my doctors they shrugged it off as no big deal, and never even tried to give me any answers. I've been dying for a name and specific test to show people I'm not freaking crazy lol.

Since my stomach's been fine since starting the percocet, I haven't sought any treatment in years.
Before that, I had every test under the sun done, tried every prescription and otc meds, and tried every diet. For years I could only drink room temperature water and could only eat what's on the BRAT diet (bananas, rice, applesauce & toast.)

My husband and I always thought it was weird that the lomotil didn't work very well, yet straight opiates do.
I used to have to load up on the lomotil & pepto, and cross my fingers I'd be ok long enough to do whatever I had to do outside the house. :/

The injections didn't help my back AT ALL. I think the majority of my back pain now is being caused by the meds themselves. Years ago a PA told me that and I thought he was crazy until my meds started being taken down. The lower my meds get, the less severe my back pain gets.


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