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 Post subject: Hello
PostPosted: Sat Mar 19, 2016 12:29 am 
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Hi my name is Barbara, I am 61 years old. I got addict to pain meds while I was taking treatments for bladder cancer. When I first started on pain meds 6 years ago I was taking 40 mg of oxycontin every 6 hrs as well as morphine 30 mg forgot how often. I wasn't taking the morphine very often and soon just stopped taking it. After I finshed my cancer treatments and started feeling better I started weaning myself off the oxycontin and had gotten down to 10 mg 2 times a day. I was using a pill spiltter and dividing the pill into 4 pieces. I would go every month and get my presription for the oxycontin I wasn't having any pain at that time. I never told my doctor that I was doing that. Then one day while I was at the doctor I told him that I wanted to get off the oxycontin and told him everything. I had tried to stop the oxycontin myself and I couldn't. He suggested that I go on Suboxone 8mg/2mg 1 film 2 times a day. I was very lucky that my MD is also a Suboxone doctor. Which I agreed to. I am very lucky my insurance will pay for it. And I have a very low co-pay for it. He suggested that I go on Suboxone 8mg/2mg 1 film 2 times a day. I was very lucky that my MD is also a Suboxone doctor. Which I agreed to. I am very lucky my insurance will pay for it. And I have a very low co-pay for it. I was never able to do a whole film at one time I had to split them in half or I would throw up it was to strong for me. I did that for over a year. Then I started on my cutting down my dosage of suboxone to 1/4 of a film 2 days a day which I did tell my doctor about. This year on February 17th I asked him about cutting it down again. He cut it down again to 1/8 of a film 2 times a day he told me to do that for 1 month. I will admit it was total hell for me after a few days I had really bad sweating spells, chills, couldn't sleep, eat and had the jitters. I went back to see my doctor and he put me on something for the anxiety and to help me sleep. Neither of them are habit froming. But I made it the 30 days and didn't increase the doseage back up. Yesterday(March 17) at my appoiment he cut my suboxone down to 1/8 of a film 1 time a day until April 1 then he told me to start taking 1/8 of a film every other day. Then he said that I would then totally stop taking the suboxone. To be truthful I am really scared of this cut back and hope it is not as bad as it was last 30 days were. I pray that I am strong enough to do this.

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 Post subject: Re: Hello
PostPosted: Sat Mar 19, 2016 1:27 am 
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Hi Barbara,

This is a great place for getting the support and answers you need. Others will soon come along w a proper welcome and w more expertise.

I just have a couple of questions: Are you wanting to stop bup? Or, is it your bup doc that now wants you to stop? Or, is it both of you want you off, but the taper schedule sounds aggressive? A little more info from you is helpful to best support and help you and your goals. From my readings on this forum, a long and slow taper is best IF stopping bup is in your best interest. Look forward to more details, if you don't mind. Glad you are here! Best, P

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 Post subject: Re: Hello Pelican
PostPosted: Sat Mar 19, 2016 10:23 am 
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Hi Pelican, It is nice to meet you. Thank you for the very warm welcome. It is mainly me that wants to get off of the suboxone for more than one reason. I will explain in more detail a little in this posting. My doctor does support me on this. But there is more to this that I didn't mention. This may end up bring a long posting and for that I am sorry. 3 years ago I had to go back on hospice home health due to having COPD. My hospice home health nurse had never even heard of Suboxone and did everything she could to educate herself on this drug. I have never withheld that I was on Suboxone to any health care provider I have to see. Last year in April (2015) I had serious back issues, that lasted for 3 month my right leg went totally paralyzed, I fell 27 times because of it, had to use a walker, both my feet and legs were swollen as big as volley balls. I had never had such pain in all my life. And of course I couldn't take any pain meds. I was going back and forth to my doctor 3 to 4 times a week. All he would ever say is I know you are sick but I don't know what is wrong with you and turn around and walk out of the room. I kept telling him my back is killing me. It was like he didn't hear a word I was saying. My hospice home health nurse was at her wits end trying to get help for me. This went on for almost 3 months. Finally I decided to see if I could find a orthopaedic doctor who would see me without a referral and thank God I was able to. Who didn't waste any time in finding out what was wrong with me. I had to have 28 weeks of physical therapy for my back going 3 times a week and he gave me Lyrica 50 MG to take 1 time a day and yes he knew I was on Suboxone. He also sent me to a heart doctor because of all of the swelling I had in my feet and legs and he gave me what he called a miracle pill and said he would have all the fluid off me in 3 days and my feet and legs were back to normal. And I was starting to feel so much better. Then it was discovered that I have both large and small neuropathy in both of my legs and I am still taking the Lyrica 50 MG to take 1 time a day and have also am now taking Xanax 1 mg every 8 hours for the anexity of coming off the suboxone. And I was also put on Restoril 15 mg 1 time a night to help me sleep at night I got where I wasn't sleeping. How safe is this and how long should I wait in between taking each medication I don't want to over dose and wake up knocking on heavens or hells front door.
The main reason I need to come off the suboxone is that my bladder cancer has came back and is more serious than before and I know somewhere down the road I will need pain meds. But for now my main concern is how far I should be taking these different meds to keep from over dosing and getting the most benefit from the meds . Last night was the 1st night that I was down to the 1/8 of a film of Suboxone and I felt like total crap, had awful night mares, had really bad sweating spells, chills the jitters, my whole body hurts me and a headache. I am also scared that the taper schedule is way too aggressive. Any input is greatly appreciated. And please feel free to ask any questions you may have. I have not one single thing to hide. Thanks for being here for me. It means more than you will ever know.

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 Post subject: Re: Hello
PostPosted: Sat Mar 19, 2016 2:11 pm 
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Hi lilmansmom,

Surgery, pain, and trying to find relief while on Suboxone has been written about extensively here on the forum. Actually, it's on the Talk Zone section, click button up top this page.

Here is just one reference to many articles Dr. Junig has written about pain control while taking Suboxone. http://suboxonetalkzone.com/category/surgery/

I too am 61 and battled cancer back in '11 & '12. Pain was my worst enemy then but I couldn't get my doctor to listen. There was only one specialist in town who dealt with my kind of cancer so I was basically stuck. I did get down to 1 mg and then stopped. Bad mistake. I should have stayed on it and also took the pain meds. My doc just didn't give me anything strong enough to make a dent. And when I tried for the 4th time to discuss my pain problem with him while in the hospital, he looked me straight in the eyes and said "I don't want to discuss this anymore". If he hadn't saved my life I seriously considered suing him for undue pain and suffering. Jessh, I get mad thinking about it now!

But read the articles and ask the questions. You'll be okay. We will all face pain eventually. In life, it cannot be avoided. As for me; I'm stable on 6 mg's of Suboxone today. And my doctor was like yours. (my GP, not my surgeon) He said his patients can only take Suboxone for 6 months. That was in 2011. Obviously he changed his mind. Talk to yours. Pull the big C card if you have to. Just tell him you need to be on maintenance until you're ready to taper and stop. Being forced always ends terribly. (quote me on that)

Welcome to the forum!

Rule62

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 Post subject: Re: Hello
PostPosted: Sat Mar 19, 2016 2:27 pm 
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Joined: Thu Sep 03, 2015 2:18 pm
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Hi Barbara, goodness, it hurts my heart to read stories like yours. There are far too many. I'm glad you shared your story here and I hope you share more. I've not been here long and don't have enough intelligent info to offer other than stick around, read, read, read, and good luck getting the right treatment. I know it's difficult to know what that is. We often expect our healthcare providers to do that for us or with us and they often do the opposite so yeah, it's a hard road but it's passable. I think the trick is being as pro active for ourselves as we can. And if we can't then find an advocate or case worker that will advocate for you. I do that when I get lousy doctors that don't listen. Advocates are paid to help us navigate the twisted confusing and contradictory health care system......

good luck and warm regards, megster


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Fond Du Lac Psychiatry
Dr. Jeffrey Junig, M.D., Ph.D.

  • Board Certified Psychiatrist
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