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PostPosted: Wed Oct 28, 2009 5:08 pm 
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I have hung around this board a lot, I haven't posted. I am on 24mgs of Suboxone, I am in chronic pain and Suboxone does very little (really nothing) to help. I am thinking about going on Methadone for the pain and addiction. I never plan on being "drug free" it is just not an option for me. So, if anyone has been on Methadone for awhile and they have a degenerative disease, I have two (Multiple Sclerosis and Degenerative Disc Disease with Arachnoiditis of the Lumbar spine) I would appreciate what your thoughts might be. I have been on Suboxone for about 8 months, my life has come to a complete stop, as I can go no where due to the pain, spasms and fatigue. When I was on narcotic pain medications I could at least continue to do many of my daily life activities, now on Suboxone I am on the side lines, not participating in my own life at all. The pain is not managable on just Suboxone. I would appreciate any feedback.
Many Thanks


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PostPosted: Mon Nov 02, 2009 2:30 pm 
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... I've never actually heard of anyone using suboxone for pain. Suboxone is for people who are trying to either maintain their addiction or use it to slowly taper off (that goes as well for methadone - although I have heard of some severe back pain related injuries in which they turn to methadone after everything else stops working, but normally its not prescribed for "pain". If you have a legitimate reason for your prescription and your not abusing it, suboxone might not be for you.


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PostPosted: Mon Nov 02, 2009 4:59 pm 
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I've read many times that Doctors have used sub to treat pain. It works very well for my pain issues.


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PostPosted: Mon Nov 02, 2009 5:33 pm 
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RonnieSr79 wrote:
I've read many times that Doctors have used sub to treat pain. It works very well for my pain issues.



The second compound of the two that make up Suboxone is Naloxone, which is there specifically to keep addicts from injecting the suboxone... you must be referring to subutex, which I guess I could imagine that.. I have just never heard of suboxone or subutex being used beyond the spectrum of addiction treatment.


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PostPosted: Tue Nov 03, 2009 11:48 am 
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Hi Kerouackat -

Here is my $.02. You are living my wife's life - change MS for her "Lupus like" autoimmune disease. Add on your back, and you are really in a tough spot.

Until there is a cure for these cursed autoimmune diseases (Lupus, Rheumatiod Arthritis, MS, ...and on and on) - then the patient is stuck with whatever symptom management is available once you try the approved medications. In MS - aren't there drugs called the "A, B, C" drugs? Cuz they start with A, B, and C? For certain, you should try those first before methadone.

First, with your MS - I just want to make sure you have the proper specialist working with you - either a Rheumatologist, or a Neurologist - I can't remember for MS. If you don't and your family doc is tackling your issues - then I wish you well. We (my wife and I ) went that route for years - well meaning - but eventually the limits of the family doc hits the limits.

If you are with a specialist, as we were for 5 years, they had very little to really control/help with the pain. Her's attacks every muscle - and connective tissue. During those years, it was literally 4 hot pads a day, and 5-6 hot baths - just so she could see the kids off to school, and be home with them until I got home after work. She wanted to be a stay-at-home mom, and the pain was stealing that part of her life away.

Well, honestly we started measuring her "quality" of life in hours, and parts of hours. If she had 2 hours a day at that time where she wasn't just existing - that was a good day. Sound familiar? All the doctors tried all they had, and when the pain was not manageable, they said - we will treat the disease the best we can, but you need the help of a pain clinic.

Enter Methadone. The pain clinic has given our family back a life. Sure, it's opoid based for her - but it is a life. Until there is a cure (which would obviously remove the pain) - Methadone has been a miracle for us. We have lived through the scorn, and people thinking she is a hypochondriac.

I have heard of general doctors prescribing methadone. Honest - I would not recommend you take that route. Methadone is a long acting full antagonist opioid with a long half life. It also takes a long(er) time to come up to blood level. You will develop a tolerance, and a dependency. The reason I say I recommend you be monitored by a pain clinic is that addiction is possible (dependency is almost certain) - but you need to be VERY careful on titration. Lots of bad press about people who have taken methadone wrong. It is not like a percocet, or lortab. You don't get any immediate help - so people take another, and another trying to get relief - and whamo - they are in the ER - O/D - no breathing. Please hear me, I'm a proponent of this treatment for pain (just because we have a life now because of her pain clinic). Still you need to be in the right hands - and be honest, compliant, etc.

Have you read through this forum, or on Youtube where suboxdoc shows the ceiling effect of suboxone? You likely are not getting enough relief due to that - where others in less pain (no MS, or back degenerated) - are able to use suboxone and it meets their pain level needs.

My disclaimer is - I am not a doctor. I recommend you be sure you are in a pain management facility if you do methadone. I also recommend you you follow the pain plan they lay out for you. If you can't follow that - I would not start down the methadone road - you will not get a "buzz." I am guessing the "buzz" days for you are long gone with pain - although I could be wrong.

I hope this helps some.


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PostPosted: Thu Nov 05, 2009 1:50 am 
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I have gone between Methadone and Suboxone, only for maintenance treatment however. These conditions you have are associate with horrible amounts of pain that I don't think any doctor would advise you to suffer from unaided. MY advice would be to go with the methadone. I know, especially among suboxone users methadone has, well let's just call it a stigma.
The truth is that methadone is the single most studied medicine in the world. It is very safe when taken like it's suppose to be. Even more relevant to your case is that methadone is a FULL opiate agonist. Bup is only a partial opiate agonist and at some receptor sites is actually an agonist. Some one with debilitating pain is going to receive much more analgesic benefit from a full rather than partial agonist activity in those crazy receptors. As far as allowing you to lead a normal life: hey, you can't be useful to others when your in so much pain. The only draw back from methadone in your case is that methadone has a very long half-life, causing it to stick around as long as possible while you withdraw. Most of those wd symptoms can easily be treated with: suboxone. When you ready and feel like the pain is more manageable, cuz at this point, it obviously isn't. Good luck.


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