It is currently Fri Aug 18, 2017 6:01 pm



All times are UTC - 5 hours [ DST ]


Our Sponsors





Post new topic Reply to topic  [ 6 posts ] 
Author Message
PostPosted: Fri Nov 30, 2012 2:57 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Sat Jan 01, 2011 12:59 pm
Posts: 1039
I decided to stop posting on my thread under Stopping Suboxone because I'm really not stopping at this point. But I did want to give an update. My wonderful doctor who I got in with finally, who then gave notice she was leaving....She told me on the side that she is coming back part time after her medical leave and is only taking a small group of patients who are complying with all the rules and coming to all the groups. And the fact that she told me this indicates that I made the cut. Yay! It's a good feeling knowing my urines are clean all the time.

My doc is so awesome. For group she has an instructor come in and do yoga and meditation with us - at her own expense, because none of the insurances cover it. It is so helpful in learning to handle stress and stay in the the moment - Ive been through talk therapy and "drug" treatment (where they seem to give a lot of info. we already know), which can be great, but they have never actually helped me when I want to pick up drugs. My doc is totally into any means that will help us get better - she even had a Reiki healer come in one time.

**Now about the title - most of us have some sort of dual diagnosis, so we know that docs use trial and error when starting us on psych meds. I personally have taken at least 3 I was allergic to. So my doc is going to give me a DNA test (a cheek swab) that will will tell which CYP liver enzymes I might lack. (This is genetic not a result of liver damage caused by drug abuse.)
So once the test is done it becomes part of my permanent medical record, and docs can avoid prescribing drugs that rely on metabolic pathways with nzymes I might be lacking. The information also helps determine dosage levels, and can be used in some diagnostic testing. My doc says there are hypotheses that suggest addiction itself might be linked to a lack of certain enzymes. This isn't known yet, but in the future the results of the test might give me even more information.**

It's so, so important to have a good doctor. I have been to 5 all together, 3 of whom I only saw once. I know a lot of people are in an area with no choices. But for me, I wasted over 2 years with a doc who saw me for 5 min, never did a urine, never had me attend a group or counseling and gave me as much Sub as I wanted. He was basically a drug dealers dream. Luckily, I didn't become a dealer, but I didn't have any incentive to stay clean either. I really believe I needed to go through everything I have so I could get where I am now, with a Dr. who is actually going to help me.


Top
 Profile  
 
 Post subject: A Good Doctor
PostPosted: Fri Nov 30, 2012 11:06 pm 
Offline
Moderator
Moderator
User avatar

Joined: Sun Jan 02, 2011 12:35 am
Posts: 2801
Location: Southwest
That's great Lillyvall,

It irritates me to no end when I hear of Dr.'s prescribing Sub w/o the patient going through the program that the physician was trained to do! Too much Bup on the street only makes it harder for those of us who do it the right way.

I believe mental illness and addiction run together. The patient should be treated as a whole being when it comes to testing for brain function. What is lacking, who's OCD, got anxiety, and the list goes on and on. A great deal of us needed anti-depressants on top of Sub just to start the day.

So thank you for posting that. It is a subject that always needs attention.

Rule

P.S. A little over a week ago I cut my dose of Effexor from 150mg's to 75mg's and felt no ill effects. My goal is to be completely off them in a few months, meaning I won't rush this taper. My Dr. advised me not to because of the side effects, but that is precisely why I'm stopping them, the side effects!

_________________
Don't take yourself so damn seriously


Top
 Profile  
 
 Post subject:
PostPosted: Sat Dec 01, 2012 12:32 am 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Sat Aug 04, 2012 11:02 pm
Posts: 994
Hey Lilly thanks for bringing this up.

This is a pretty new area of medicine and genetic testing for liver enzymes has only recently been put into practical use. I've got a funny story about getting tested for ultra-rapid metabolism because it was such a newish area of science at the time. Maybe later. But I've tried to stay up to date with new developments in this area because of my own issues with rapid metabolism of Suboxone. I really do feel that they're only going to discover more and more about differences in metabolism and how drug interactions may actually vary depending on genetics.

The CYP enzymes related to Suboxone are CYP3A4 and CYP2D6. Some studies emphasise CYP3A4, others CYP2D6. CYP2D6 is more well known for interactions, and there's a class of people called Ultra Rapid Metabolisers of CYP2D6 who may find themselves burning through their buprenorphine faster than others.

I've had ongoing problems with rapid metabolism, however I recently quit smoking again and ever since have found the problem to go away. No more waking up in mild withdrawals! How crazy is that! Maybe I was absorbing less? Or maybe it somehow induced my metabolism? Who knows.

As for my crazy story. I told one of my old doctors about my metabolism issues and he suggested I get this new genetic test done. Anyway I go get the blood test, go see the doctor a couple of weeks later and he checks the results. He said "that's funny. Seems the pathologists did the wrong test. They did the genetic test for Celiac disease and you tested positive! Looks like you're gluten intolerant!" WTF? The next two weeks I ate no gluten which was a real pain for me and my partner. It fucking sucked, so I felt I should get a second opinion. Asked my sister (medico) about it and she said the test doesn't mean shit without the other test, and symptoms. So I didn't have celiac. Kidna lost a bit of faith in my doctor after that drama.


Top
 Profile  
 
Our Sponsors
 Post subject:
PostPosted: Sat Dec 01, 2012 4:04 am 
Offline
6 Months or More
6 Months or More
User avatar

Joined: Tue Mar 29, 2011 2:10 pm
Posts: 231
Location: pacific nw
Yay Lilly!

I am so happy you have found this doctor who is actually treating you. I have always felt bad for those who have to deal with shitty docs. Mine is just like yours. I believe he saved my life.

I also like what yoi said about having to go through everything to get to where you are now. I firmly believe this is true for me too. My relapse cost me my job but lead me to a totally awesome job. I have not felt this good in a long time.

I just wanted to comment to say I am happy for you and look forward to your updates. I hope you have made peace with being on sub for a bit longer and hope things are good at home.

Keep up the good work!


Top
 Profile  
 
 Post subject:
PostPosted: Sat Dec 01, 2012 9:55 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Thu Oct 21, 2010 10:39 am
Posts: 4028
Location: Sitting at my computer
Hey Lilly,

I'm glad to hear you're doing well and I completely agree with the whole, "I had to go through all of this to get where I am" statement you made. While we're going through it, we're often very bitter and angry with the whole situation, but once it's over, we can see the incredible postive that it was. I'm glad you got in with a great doctor, you deserve it!!

TJ, that's funny about the Celiac diagnosis. My mom and brother have Celiac disease and once I quit opiates, I couldn't "use the bathroom right." I was so afraid of being diagnosed positive for Celiac (no way on earth I was going to a gluten free diet!!) that I put up with the bathroom issues for almost 2 years. My wife would make appointments for me with a gastroenterologist and I'd call and cancel the appointments. Anyway, I finally went to the gastro doc, did a blood tesst for Celiac and got the ol' Roto-Rooter done, everything looked great he said and NO Celiac. He told me to take some fiber capsules with my meals and BAM.....problem solved. For 2 dang years I put up bathroom issues when all I had to do was eat some damn fiber capsules with my meals!!!! Crazy, eh?

_________________
Be kind to yourself. Our character defects do NOT define who we are!


Top
 Profile  
 
 Post subject:
PostPosted: Sun Dec 02, 2012 5:05 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Tue Nov 01, 2011 11:48 pm
Posts: 1346
Location: oregon coast
Lilly,,,

Im so glad you have a good doctor,,,,, that really IS great....... I love to hear that other people's suboxone
Dr.'s have groups, and things like that,,,, Your right, to HELP US DEAL with life, WITHOUT getting high,,,,,
a VERY IMPORTANT piece of the puzzle,
Like the MIDDLE piece, if you ask me............
my doctor is ALWAYS running behind, because he takes the time to TALK with each patient and make sure your
doing well, anything you bring up during your appointment, is dealt with RIGHT then.................

Sometimes you can wait like an hour ,,, before going in to a patient room,

Not many of "us" that were going to group, could afford to get IN to see a counselor/therapist.....
After it was brought up how ever many times,
my doctor looked into a few things, and NOW,
while you wait,,,, at your appointment, you see a STUDENT counselor/therapist,,,
for the half hour to 45 mins before you see the doctor,,,,,,

Now, you dont' HAVE to, if you see one on your own,,,
I just thought it was a GREAT idea, a great way to take care of the wait, while not compromising his
patients, AND take care of the fact that some people especially w/no insurance cannot afford it.

AND, there's an addiction specialist now that comes to the groups,,,,
which is GREAT, too.
I really like her, also...
the student counselors, are great, you can choose to see the same one, or a different one,each time.....

the genetic testing thing is GREAT........
the clinic I go to, WITH the help of my awesome doctor, is ACTUALLY COVERING THE COST for ME to have
the Test that can tell, if you have the "breast cancer gene"
My grandma, had breast cancer, at just 40,,,,
and the dr.'s told her then she probably had it two years,,,,
So,
my point,,,,,doesn't it feel GREAT to actually TAKE CARE of our health???
I remember ALWAYS going to the doctor to CON some poor proffesional outta as MANY pain pills as possible.....
and never gave two shiznits about a damn thing they said, OTHER than WHAT kind of pills I'd be getting......

Good for you lilly,,,,
oh,
yes, my doctor also told me, when I went on my ADHD meds, that I was "about the best patient I've had"
THAT was awesome,,,,,, sooo great to hear,
such a "relief" I guess, too?
that I don't have to worry,about him leaving me hang out to dry or something???

anyways,,,
GLAD to hear your doing well, VERY GOOD NEWS....

have a great sunday :wink:

_________________
anyone can give up,
its the easiest thing in the world to do, but to
hold it together, when everyone would understand if you fell apart
That's TRUE STRENGTH
http://almostoneyearclean.blogspot.com/


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 6 posts ] 

All times are UTC - 5 hours [ DST ]


Who is online

Users browsing this forum: No registered users and 0 guests


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Our Sponsors
Suboxone Forum latest topics RSS feed Subscribe to the entire forum
 

 

 
Fond Du Lac Psychiatry
Dr. Jeffrey Junig, M.D., Ph.D.

  • Board Certified Psychiatrist
  • Asst Clinical Professor, Medical College of Wisconsin

Powered by phpBB® Forum Software © phpBB Group