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PostPosted: Mon Aug 19, 2013 1:38 am 
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Hi everyone! My situation is difficult to describe, but I am going to do my best. I am a former heroin user that has been on Suboxone film for almost 2 years. I have a few medical problems that cause chronic pain, such as the autoimmune disease Sjogren's syndrome and sphincter of oddi disease. I am taking a lot of prescription medication, but still very bothered by pain and other symptoms much of the time. I have often wished that I could find a physician who would listen to my entire story and prescribe methadone pills to me for pain. Anyway, the current situation is that I need a medical procedure called an ERCP with sphincterotomy, which is the typical treatment for sphincter of oddi disease. This requires a 3-5 day hospital stay with opioid analgesia. My gastroenterologist tried to find a pain management specialist associated with the particular hospital that this is to take place at, but they wouldn't accept my insurance. After that, their recommendation was that I go to a methadone clinic to transfer from Suboxone to methadone. This is all due to the fact that Suboxone blocks other opiates, and nobody really seems to know how to handle this situation, including my Suboxone prescriber! I had gynecologic surgery on Suboxone, and the pain pills did not help. I do not want to go through something like that again! I guess I want to know does anyone with chronic pain go to a methadone clinic? If so, does it help with your pain? Will transferring to methadone prior to the ERCP help me at all? I have taken 16mg most of the time I have been on Suboxone, and in the last month I've dropped to 4mg. Thank you to anyone who replies!


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PostPosted: Mon Aug 19, 2013 1:44 am 
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I'm sorry that no one felt knowledgeable enough about your situation to reply. Most of the recommendations I've seen for post surgical pain relief is to go off suboxone a few days prior to the surgery so that opiate medication they give you will work. The other thing I've heard is that suboxone bumps up your tolerance for opiates a bunch, so your prescribing doctor needs to understand that you will need stronger medication than most people.

Amy

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PostPosted: Mon Aug 19, 2013 2:22 am 
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Thanks, Amy. I hear those recommendations a lot also.


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PostPosted: Mon Aug 19, 2013 9:21 am 
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http://www.suboxonetalkzone.com/taking- ... g-surgery/

Print off this blog post and give it to your treatment team. PAX


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PostPosted: Tue Aug 20, 2013 12:59 am 
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I am a chronic paint patient attending a methadone clinic. I was on suboxone for four years, worst four years of my life. Sub is not even comparable to methadone when your talking in the pain aspect. So yes it will help your pain. Also being on methadone will make your operation easier for you but the medical team as well. I don't know about any of you guys but I would be scared shitless going into a operation knowing the Drs I'm relying on to help me don't have the slightest clue of how to treat me let alone anyone on suboxone. Even if you find a understanding Dr they'll still never give you enough pain meds.

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PostPosted: Wed Aug 21, 2013 3:54 pm 
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I may have just registered but Ive lurked here for years now and your anti sub propaganda is really starting to bother me (which means you accomplished your goal). EVERY SINGLE ONE of your posts includes the sentence "suboxone is the worst thing that ever happened to you" and its getting tiresome. Oh and just a little info I was on methadone maintenance for close to 3 years starting back in 2003 after I got sick of taking opiates for pain everyday and the pills not working anymore so Ive been on either side so Im not talking out of my ass. Im on subutex now and grateful as hell that Im not chained to that green sludge anymore. Yeah methadone is great at first, you get high once your dose is raised enough and it lasts a long time so of course you do so "great" on it. Having 170mgs of methadone coursing through your system all the time will have anyone feeling "great" but it wont last forever.

It stops working on pain and stops getting you high after being on it long enough and at a certain point they wont raise your dose anymore and then your just addicted to one of the hardest opioids to get off and its not even working anymore. And trying to scare people on subs that they will be in extreme pain no matter what if they have to get an operation done is pretty damn low, and uh I hate to be the bearer of bad news but being on 170mgs of methadone will block opiates almost as much if not as much as buprenorphine.

Taking opiates on top of that much methadone will do absolutely nothing so you arent in much better of a position as any of us when it comes to that. Buprenorphine has its pros and cons just like methadone does and honestly the only pro that methadone has over bupe in the mind of an addict is that methadone will get them high, everything else is almost exactly the same in terms of what they are designed to do.

I debated deleting this post because Im new and dont wanna stir things up but I dont think its fair that a person like me 3 years ago might be coming on to this site for guidance on what to do and maybe are considering the choice between the two and the methadone section is just filled with your anti sub rhetoric acting like methadone is perfect. If you get offended sorry but you go out of your way to say negative things about sub (mostly unfounded too) just to offend others so Im not gonna bite my tongue over it. Methadones not perfect and subs not perfect but coming from someone who has been on both I would rather cold turkey than go back on methadone again.


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PostPosted: Fri Aug 23, 2013 12:12 am 
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Awww wish I'd noticed your post sooner. I'm happy to finally be able to give some input on a topic I know something about. I'm new to Suboxone, 15 days now I think. BUT - years ago I was on methadone for about 3 1/2 years. Methadone will certainly help with the pain and it might be a good option under your circumstances. I actually *did* have knee surgery on methadone. The anesthesiologist elected to use a high dose of methadone post surgically since it is notoriously difficult to control pain in a methadone patient. If you do decide to go that route you should go in with your eyes open. With your history it may take a high dose to stabilize you and, at least in my experience, they don't start you out with a high enough dose. For me, I was allowed to increase 10mg daily until I stabilized which meant I hate a NASTY two weeks until my dose was high enough. I live in the south, so that is a factor because methadone can cause sweating and when you combine that with our awful summers it would often be necessary to increase doses during the summer months. It was a bitch getting off methadone, too. I had to tape very, very slowly....all the way down to 1 mg daily before I jumped off successfully. It took me 3 years and 2 unsuccessful attempts. I hope everything turns out well and that you are able to make a choice that's good for YOU.


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PostPosted: Sun Sep 01, 2013 3:59 pm 
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It's cool buddy no anger here it takes a lot to get me mad, epically over a Internet forum! I don't aspect you or anybody else will ever understand my hatred towards suboxone. When I have more time I'll post all the reasons why for you.



Buprecision wrote:
I may have just registered but Ive lurked here for years now and your anti sub propaganda is really starting to bother me (which means you accomplished your goal). EVERY SINGLE ONE of your posts includes the sentence "suboxone is the worst thing that ever happened to you" and its getting tiresome. Oh and just a little info I was on methadone maintenance for close to 3 years starting back in 2003 after I got sick of taking opiates for pain everyday and the pills not working anymore so Ive been on either side so Im not talking out of my ass. Im on subutex now and grateful as hell that Im not chained to that green sludge anymore. Yeah methadone is great at first, you get high once your dose is raised enough and it lasts a long time so of course you do so "great" on it. Having 170mgs of methadone coursing through your system all the time will have anyone feeling "great" but it wont last forever.

It stops working on pain and stops getting you high after being on it long enough and at a certain point they wont raise your dose anymore and then your just addicted to one of the hardest opioids to get off and its not even working anymore. And trying to scare people on subs that they will be in extreme pain no matter what if they have to get an operation done is pretty damn low, and uh I hate to be the bearer of bad news but being on 170mgs of methadone will block opiates almost as much if not as much as buprenorphine.

Taking opiates on top of that much methadone will do absolutely nothing so you arent in much better of a position as any of us when it comes to that. Buprenorphine has its pros and cons just like methadone does and honestly the only pro that methadone has over bupe in the mind of an addict is that methadone will get them high, everything else is almost exactly the same in terms of what they are designed to do.

I debated deleting this post because Im new and dont wanna stir things up but I dont think its fair that a person like me 3 years ago might be coming on to this site for guidance on what to do and maybe are considering the choice between the two and the methadone section is just filled with your anti sub rhetoric acting like methadone is perfect. If you get offended sorry but you go out of your way to say negative things about sub (mostly unfounded too) just to offend others so Im not gonna bite my tongue over it. Methadones not perfect and subs not perfect but coming from someone who has been on both I would rather cold turkey than go back on methadone again.

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PostPosted: Mon Sep 02, 2013 3:08 am 
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Buprecision,

I agree with you that Bboy comes across really strong and can be off-putting to some. And I would also hate to have a newbie come across one of his posts and make decisions based on what he alone said. I have seen him come shockingly close to defending sub against a troll who was just outright lying all over the place. And I've seen him be supportive to others. I believe he has a good heart. :)

Before I had read through Bboy's story I didn't know that there were a few people out there for whom suboxone is kind of like Kryptonite. I'm thinking it has to do with body chemistry or brain chemistry or both. It is a medication that made Bboy feel like crap, so switching to methadone was like freedom to him, I think.

I think, however, that even Bboy would admit that he's more of an exception than a rule. Yes, there are others that have come to dislike suboxone or had really bad side effects, but I don't think that there are many for whom sub is substance that can suck the strength right out of them! :D

Do I like it when he makes incredibly negative posts about suboxone? Not even a little bit. I know that's his truth, but I would prefer if he would make more "I" statements and fewer "If you go on suboxone you're going to die!" type statements. He is well aware that he is supposed to mention that these are his opinions, not fact, but sometimes he gets carried away.

Still, you have every right to challenge him on it and there are lots of members who agree with you. The nice thing about Bboy is that he really doesn't take things personally and he won't probably hold it against you. :)

Amy

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P.S. Bboy, if you want to tell Buprecision more detail, please direct him to your thread or start a different thread so we don't draw attention away from the OP. Thanks!

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PostPosted: Tue Sep 03, 2013 7:17 pm 
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Well said Amy and I'm sure he knows already why I hate suboxone if he's been a long time lurker. And everything I say is my personal views and outlook on this topic. I can't say I have 100% proven medical fact but I can say I have proff for myself.

Amy-Work In Progress wrote:
Buprecision,

I agree with you that Bboy comes across really strong and can be off-putting to some. And I would also hate to have a newbie come across one of his posts and make decisions based on what he alone said. I have seen him come shockingly close to defending sub against a troll who was just outright lying all over the place. And I've seen him be supportive to others. I believe he has a good heart. :)

Before I had read through Bboy's story I didn't know that there were a few people out there for whom suboxone is kind of like Kryptonite. I'm thinking it has to do with body chemistry or brain chemistry or both. It is a medication that made Bboy feel like crap, so switching to methadone was like freedom to him, I think.

I think, however, that even Bboy would admit that he's more of an exception than a rule. Yes, there are others that have come to dislike suboxone or had really bad side effects, but I don't think that there are many for whom sub is substance that can suck the strength right out of them! :D

Do I like it when he makes incredibly negative posts about suboxone? Not even a little bit. I know that's his truth, but I would prefer if he would make more "I" statements and fewer "If you go on suboxone you're going to die!" type statements. He is well aware that he is supposed to mention that these are his opinions, not fact, but sometimes he gets carried away.

Still, you have every right to challenge him on it and there are lots of members who agree with you. The nice thing about Bboy is that he really doesn't take things personally and he won't probably hold it against you. :)

Amy

Moderator

P.S. Bboy, if you want to tell Buprecision more detail, please direct him to your thread or start a different thread so we don't draw attention away from the OP. Thanks!

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