It is currently Sat Aug 19, 2017 9:49 am



All times are UTC - 5 hours [ DST ]


Our Sponsors





Post new topic Reply to topic  [ 51 posts ]  Go to page 1, 2, 3  Next
Author Message
 Post subject: Almost One Year off Sub!
PostPosted: Fri Aug 17, 2012 12:42 am 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Wed Jun 17, 2009 9:59 pm
Posts: 993
Location: Carson City, Nevada
Yay! I've almost made it to one full year off Suboxone. I feel 100% like I'm over any lingering issues from the Sub and have been for a while. I was on Sub for nearly six years and my doses were very high at times, up to 32 mg. I jumped from 1/16 mg after a very long taper. My jump was easy compared to my taper, which was pretty tough at times. I had rough patches along the tapering route, when I thought I would never make it and everything was hopeless. It turned out that was not true. Sticking with it is the key.

So, since stopping Sub, I have had to address some health issues. I don't think they are related to Suboxone, although I do believe that Sub was probably masking the symptoms. I had a hysterectomy, which helped my iron levels return to normal. Unfortunately, I've continued to experience symptoms which are apparently 'fibromyalgia'....a disorder I've been diagnosed with in the past and struggle a great deal with accepting, since there is no conclusive test for it. The symptoms are basically bouts of extreme fatigue, coupled with intense pain in my muscles and joints and digestive problems. I haven't had to take any narcotics for it, but it has also not been all that easy to get through, and I'm working on figuring out what else may be going on. I don't have any depression with this. It's just bad pain, plain and simple. Mentally, I feel really good being off Suboxone. It's worth whatever physical stuff I'm dealing with now.

I also had a recurrence of epilepsy, most likely because I decided to also taper off my 1/2 mg of Klonopin. So, I gave that up and am still taking my 1/2 mg and now have a referral to a neurologist, as well as a rhuemotologist.

Finding a great doctor to help me navigate this was incredibly important. I had a family doctor, who I really became attached to and confided in a great deal about everything I'd been through, and he took it upon himself to help me get to the right specialists and coordinated all that. Having him there for me made me feel like I had the problem half licked. He spent as much time as I needed; he followed up; he always called me back....His lifestyle and compassion also was incredibly inspiring to me and I made changes in my life....eating much better, making sleep a priority, making exercise a priority, etc. This doc really became my hero and helped me get through any PAWS I was having. I saw him last on July 27th, and he was pumped to go on his latest adventure in the mountains (he's a crazy rock climber athlete guy). A few days later, I found out he was missing in the mountains. On the 1st of August, his body was found. Apparently, he fell while climbing a 14,000-ft peak. I've been so upset over this, but I'm trying to remember all the positives I learned from him. To me, he was who I wish every doctor could be to their patients, and he will always have a special place in my heart.

So....one year out (almost), life is life. Life is good and bad, sad and happy, successes and failures, etc. I am enjoying the downs as well as the ups, as odd as that may sounds. I like feeling it all. Stopping Suboxone was absolutely the best thing for me, and I'd do it all over again if I had to.

Best of luck to all the fantastic peeps on this board.

laddertipper

_________________
First you take a drink, then the drink takes a drink, then the drink takes you. ~F. Scott Fitzgerald


Top
 Profile  
 
 Post subject:
PostPosted: Fri Aug 17, 2012 2:04 am 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Mon Apr 27, 2009 12:47 am
Posts: 1496
Hey Ladder - so great to hear from you, you sound awesome!

The story about your doctor is so tragic. Life is crazy strange sometimes, I'm sorry you lost such a positive influence in your life but I'm also glad you even got to experience such a great doctor.

Regarding the fibro thing - I fought against that diagnosis too. I would always put quotes around it if I ever had to say it. I feel at times like that diagnosis means "shut up and go away." So I never gave up looking for the real underlying cause of my pain and fatigue. This past fall I quit eating wheat/gluten and dairy because I was having crazy digestive issues. Those issues cleared up...and so did most of my pain and fatigue.

I thought at first it had to be mental or placebo effect or something, but then I accidentally ate something with wheat in it and the next day I felt as awful as I did the year I got diagnosed. But I got my diet back in line and it went away. And strangely enough my thyroid function improved on the gluten-free diet as well (I'm hypothyroid). It took me almost 6 years to figure it out but I think I'm finally better.

I'm not saying that gluten is your issue - it could be any number of things - but I wanted to encourage you to keep seeking a better answer if you don't believe it's fibro.

Thanks so much for stopping by to let us know how you've been (hard to believe it's been a year!) I've missed your presence on the forum and I've thought of you often. Take care of yourself and keep kicking ass!

_________________
You can't stop the waves, but you can learn to surf.

-Jack Kornfield


Top
 Profile  
 
 Post subject:
PostPosted: Fri Aug 17, 2012 5:45 am 
Offline
Long Time Member
Long Time Member

Joined: Sun Mar 27, 2011 9:45 pm
Posts: 833
hi ladder'. and very sorry for you and your great doctor :( i can rem- the nice compl- you gave me about a year ago and still think about it. i don't have any plans on stoping subs yet do to my alcoholism and fear of PAWS. but you give me some hope.
i believe i have fibromal- i have the same sympt- as every one. i read about how there's no cure or test for it and once you have it it stay's . meditation and eating healthy exercise and all that can only help the pain part depression and fatigue of fibromal- . long life of stress / PTSD is also know to cause it. well laddertipper you made it and stay sober. you are what this forum is all about. THANKS JOHNBOY

_________________
Humor is one of the best qualities in life of intelligents breeze1.wmv utube untitled 26 (2) utube just me and my music


Top
 Profile  
 
Our Sponsors
 Post subject: Hey Ladder
PostPosted: Fri Aug 17, 2012 2:15 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Mon Aug 23, 2010 3:44 pm
Posts: 460
Location: New York
So, you're off Subs. Well good for you, my friend. I am proud of you. I am so sorry to hear about your doctor. What a traagedy.

I hope you continue to do well and that you will be able to resolve your other health issues. Question. Have you tried Gabapentin for the Fribomyalgia? Being a double amputee, I get pain, spasms, cramps and feelings I can't even explain in my stumps. I find the gabapentin has helped. I think Lyrica has some narcotic in it, so I told my surgeon that Lyrica is a no-no. I'm still on subs but now I am on 8 mg a day. I don't need it for pain management because, thank God, my bad pain is gone. I have what I call discomforts.

I am happy that I came to check in to the forum and find this good news. You know I love you. Keep up the good work. I will pray for you and I know you will be alright.

I will be back to check on you from time to time. Big hug. Queenie


Top
 Profile  
 
 Post subject:
PostPosted: Fri Aug 17, 2012 8:17 pm 
Offline
Average Poster
Average Poster
User avatar

Joined: Mon Oct 31, 2011 11:30 am
Posts: 19
so proud of you LT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You have been a great inspiration to me thank -you

Courtney B :P


Top
 Profile  
 
 Post subject:
PostPosted: Fri Aug 17, 2012 9:59 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Sat Aug 04, 2012 11:02 pm
Posts: 1001
Congrats LT. It's good to have you drop in. It'd be awesome if you'd stick around and help out the people who are trying to achieve what you have.

Are you at peace yet about your time on Sub, or still feel the whole episode was a bit traumatic / unnecessary?

What is it about being off Sub that you enjoy?


Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 18, 2012 7:48 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Sat May 01, 2010 3:46 pm
Posts: 461
Location: South Florida
Dear Laddertipper,

I followed your posts while you were tapering like many others did as well. I was so excited for you when you jumped, amazed that you didnt have much acute w/d, bummed when you were dealing with paws, psyched when you posted the paws was fading and very happy for you now that you've nearly made it one year.

Good fricken job! Thanks for sharing your journey, you've helped me build up the courage to taper. I've gone from 8mg to .25mg, tried to jump but have since decided to go much lower take it nice and slow too.

Thanks again for the update,

-glen b.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 18, 2012 8:43 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Thu Oct 21, 2010 10:39 am
Posts: 4028
Location: Sitting at my computer
[marq=right]GO LT!!![/marq]

_________________
Be kind to yourself. Our character defects do NOT define who we are!


Top
 Profile  
 
 Post subject: Congratulations
PostPosted: Sat Aug 18, 2012 9:19 pm 
Offline
Moderator
Moderator
User avatar

Joined: Sun Jan 02, 2011 12:35 am
Posts: 2801
Location: Southwest
Hi LT,

I was just thinking about you yesterday and was hoping you'd post once in awhile and now you did. Such great news to know you are past the PAWS and are doing okay albeit the Fibro and the loss of your great doctor. I do think I read about that in the newspaper awhile back.

Some people think you didn't go through hard w/d's after jumping off Suboxone. Didn't you go through them while tapering? So a person can choose to feel the w/d's while tapering down to a low dose or just deal with it if you jump at say .25mg's. When the time comes for me I don't know which path I'll take. What I do know is that you've been such a great inspiration to me and I'm sure many others. Six years on Bup is a very long time, but you sure showed us all that taking it for extended years didn't really make your taper and jump any worse. At least that is my opinion from all your posts.

Reach around and pat yourself on the back a few times. You surely deserve it.

Take Care,

Rule

_________________
Don't take yourself so damn seriously


Top
 Profile  
 
   
 Post subject:
PostPosted: Sat Aug 18, 2012 10:49 pm 
Offline
Moderator
Moderator
User avatar

Joined: Thu Feb 23, 2012 4:42 am
Posts: 4127
Way to go, Laddertripper! I bet you can tackle anything now and be successful, because you've already been through so much! I can't tell you how sorry I am about your doctor. I live in Colorado, and we've lost a lot of people on our 14ers this summer. Was he hiking here?

I wish you luck with your health issues! I hope that something like gabapentin or Lyrica can help with your pain.

Amy

_________________
Done is better than perfect!


Top
 Profile  
 
 Post subject: Thank you guys!
PostPosted: Sun Aug 19, 2012 3:22 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Wed Jun 17, 2009 9:59 pm
Posts: 993
Location: Carson City, Nevada
Wow, thanks so much for all the wonderful replies and encouragement.

Yes, this year flew by!

DOAQ, I am on the same page with you about getting to the bottom of it and finding out what is causing it. I don't want to just know how to treat it. I hope i ends up being something like what you discovered.

Hi, johnboy!! Wow...you are down to 8 mg. That's a huge drop since I last 'heard' from you.

Queenie, I love you too, you sweet, sweet soul. I haven't been on gabapentin. I'll ask my rhuemotologist about that.

courtney b....have I really been an inspiration? I hope so, because I really believe we can succeed in this.

TeeJay, it's kinda hard to figure out who exactly I am now, because I do feel different, but I'm not resentful or anything. It is what it is and I certainly learned a whole lot from the entire experience. You can always make lemonade, know what I mean?

Glen bee....yes, .25 was too high for me too, but great job getting to .25. You are nearly there at this point. I look forward to getting on here more and following your story.

Romeo, how is it going????!!!!

Rule, how are you? You were going through a hell of a lot when last I read. Yes, I went through all the w/d while tapering and that's why my jump was easy. I do think it's a choice and that there is really no 'right' way. If I could have handled the anxiety aspect, I woulda just jumped earlier.

Amy, he was actually mountain climbing in CA. But I live in NV.

I love you guys!!!

laddertipper

_________________
First you take a drink, then the drink takes a drink, then the drink takes you. ~F. Scott Fitzgerald


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 19, 2012 6:35 pm 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Thu Oct 21, 2010 10:39 am
Posts: 4028
Location: Sitting at my computer
Hey laddertripper,

I'm doing good. Guess what I got this summer?? A tan!!! I'm for real.....stop laughing!!! I actually got a tan....well, maybe I'm more "off white" now, but I'm calling it a tan!! LOL

Less than a month from today and I'll break my ALL TIME clean record of 9.5 months!! WOO HOO!!!

_________________
Be kind to yourself. Our character defects do NOT define who we are!


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 19, 2012 9:03 pm 
Offline
One Month or More
One Month or More

Joined: Sat Aug 18, 2012 8:39 pm
Posts: 33
Hi
I really think its great you are a year off!!!!
That is absolutely wonderful. You are an inspiration to me. I am in day 3 as you already know from my post. I keep telling myself I can do this. Stop being a pussycat. But jeez does the time go by slow. I cannot turn back though because if I get suboxone to stop my withdrawals I will only have wasted 3 days of going through this.

I also have a doctor whom I am / was close to. I am so sorry that he passed away. I understand that he is physically gone but his spirit lives on in your recovery. Don't forget that. You are his successor. He had a vision in you. Something he saw. Something called GOOD, something called decency. Something humanity loses day by day. So remember all the positivity he threw towards you and everything will be fine. My doctor whom I am close with is my family doctor. My suboxone doctor was a jerk off. He was a business man. Since he is the same religion as my mom and a similar race (middle eastern) he would use to that his advantage to lure my mom in in the meetings. However my family doctor was amazing. When I told him I want to go back to school to be a nurse (I start tommorow) he told me no reza(RJ) go be a dentist. Be a doctor. My brother is a doctor and I always felt worthless academically speaking and less superior. So he motivated me to do what I really wanted. Nursing is still a very honorable profession and tough but I didn't truly want to do that. I just chose it because it's a bit easier to get through than medical/dental school.

Anyhow I've gone too much into me. This is your topic not mine. My point is great job. You inspire me and give me hope. Sorry if I rambled.


Top
 Profile  
 
   
PostPosted: Mon Aug 20, 2012 10:36 pm 
Offline
Average Poster
Average Poster

Joined: Mon Aug 20, 2012 10:17 pm
Posts: 21
The reason why you've made it 1 year is because you've been taking Klonopin/Clonazepam. This has to shown to make withdrawal and PAWS very bearable. Had you never taken this benzo then mostly probably it would have been a much different experience. Unless you was withdrawing from Klonopin or tapering the Klonopin then the suboxone detox has been more then doable for you because of this benzo. Not everybody can take klonopin or any other benzo for a year or so to help suboxone withdrawals and PAWS. Then there is the issue of tapering the kpnopin and coming off that, that may be a even worse experience, so in my opinion I would point the finger at klonopin in helping you making it this far as well as your tapering off the suboxone.

The symptoms you face now such as fibromyalgia and other psychical problems are highly related to the suboxone. I say this because 5 other people were diagnosed with this condition and other symptoms too after they quit suboxone, but they never had these problems prior to starting on suboxone.

I know 3 people personally who still have problems today after quitting suboxone couple of years ago, they tell me they aren't well at all. 1 recently found out she had brain lesions and her doc said this was mostly due to the suboxone. So try to get checked out for that. Have a blood test, a liver function test and a MRI scan. The suboxone creates a lot of psychical problems, do not rule out liver damage as the suboxone does contribute problems to this. Problems can arise several months after quitting suboxone and even after a year or 2. My good friend at meetings claims she is always tired and crummy, she#s been off the suboxone for 15 months, she too tapered to 0.1 after a 3 year use, yet she feels the affects of suboxone..


There is not much we know about the long term damage of suboxone, many people who quit claim of brutal depression lasting for several months, psychical problems which arise later, feeling unmotivated to do anything and never being able to feel the same, thats why so many people relapse or cannot stay clean from the suboxone, the PAWS are just too damn long and people are always in psychical pain. Only now some doctors are realizing this and pushing people to get off suboxone ASAP for their own benefit.

Staying on suboxone for more then 6 months turns you into a ghost and a zombie. You do not feel interested in anything at all and you cannot live a life like that..Am glad you got off the suboxone. We can only warn people of the dangers and lasting damage this opiate can create.

The difference between methadone and suboxone is that methadone PAWS aren't long lasting and do not give you pain for more then couple of months compared to suboxone's. Thats why more and more people are claiming suboxone is the harsher of the 2 long half life opioids.

I hope people will look deeply into suboxone and make the correct decision in coming off or not even staring it in the first place. There aren't many people who have stayed clean for more then 13 months at the max after quitting suboxone. For people not taking a benzo a suboxone detox is grueling and brutal. But the problem is not everybody can get a supply of a benzo for a year or 2 to help with suboxone PAWS.

I hope people read into my statements properly and make an informed decision.

Thank you for your time in reading this.

Bless.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Aug 20, 2012 11:14 pm 
Offline
Moderator
Moderator
User avatar

Joined: Thu Feb 23, 2012 4:42 am
Posts: 4127
Hessler,

The information you site in your post is anecdotal at best and hearsay and opinion at worst. First of all, while I'm tapering my dose of suboxone in the interest of eventually coming off, I've been on it longer than 6 months and I'm not a ghost or a zombie. Many people have remarked that since starting the suboxone, I'm back to my old self. I feel things very deeply, which is why I "feel" very offended that you are making such a blanket statement about everyone on suboxone. I'm also feeling offended on behalf of Laddertipper because you've basically made it seem that because she takes Klonopin, she has had no part in her own recovery. She takes Klonopin and that's the only reason she has made it a year without sub??? Bull! That's a really insulting thing to say.

A lot of people who go off sub are depressed? Of course they are. That is part of PAWS. Plus, many people who are addicted to drugs are self-medicating their depression/anxiety problems in the first place. They might not have been diagnosed previously, but the problem was most likely there and is being accentuated by PAWS.

Have you ever been on suboxone? It doesn't make a difference to me that you know 3 to 5 people who have had bad experiences with suboxone. Your own experience might interest me a little bit, but you've only talked about other people who you know through meetings. That, in and of itself makes me aware of your potential bias.

I'm not sure if you are aware of what would meet the standard of scientific evidence, but it's definitely not based on your statement, "because 5 other people were diagnosed with this condition and other symptoms too after they quit suboxone". I agree there is, so far, no scientific evidence of long term damage caused by suboxone. There could be long term side effects that haven't yet been discovered. However, weighed against the damage I was doing to myself physically and mentally while abusing opiates, suboxone's side effects have been minimal, manageable, and very worth it. Your friend's doctor has no proof that suboxone causes brain lesions, or the doctor would have published this evidence.

There have been several topics on this discussion forum about peoples' experiences with suboxone versus methadone. Yes, there are pros and cons to both. There are several people here who have been on methadone and then switched to suboxone, and are happier with the suboxone.

It's pretty clear that you have an anti-suboxone agenda. That's fine. Everyone is entitled to their own opinion. But when you start spewing misinformation and acting as if it is fact, I draw the line. Also, you should apologize to Laddertipper for denigrating her milestone by implying that she has only stayed sober because of Klonopin. That's a slap in the face of her accomplishment.

Amy

_________________
Done is better than perfect!


Last edited by Amy-Work In Progress on Tue Aug 21, 2012 12:38 am, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 21, 2012 12:06 am 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Mon Apr 27, 2009 12:47 am
Posts: 1496
Hey Hessler!

Since you figured out laddertipper's secret to staying off Suboxone, maybe you could be so kind as to figure out how I've done it. I've been off for 3 years and I don't take benzos or any other psych meds for that matter.

I'm interested to know exactly how I'm able to do this impossible task and if you could tell me I'd greatly appreciate it because I'm sure I could sell the information for a healthy profit.

Thanks!

_________________
You can't stop the waves, but you can learn to surf.

-Jack Kornfield


Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 21, 2012 12:34 am 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Tue Nov 01, 2011 11:48 pm
Posts: 1346
Location: oregon coast
thanks amy, that was a really nice post.

and diary's was good too. LOL

Im pretty sure I was a ZOMBIE,,,, BEFORE the suboxone. I didnt work for 3+ years, was always sleeping, was always 'nodding out' ya know, that kind of thing. why? cuz I was an opiate addict. any opiate, all opiates, all the time.

NOW, im the complete opposite. I work full time, I excersise each morning, I play with my son every day when I get HOME from WORK (and I work a completey labor-intensive job)

So, Im no ghost, or zombie. NOW.
but I used to be!!!!!

(edit).......
HOWEVER.............everyone is intitled to thier own opinion!!

_________________
anyone can give up,
its the easiest thing in the world to do, but to
hold it together, when everyone would understand if you fell apart
That's TRUE STRENGTH
http://almostoneyearclean.blogspot.com/


Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 21, 2012 12:48 am 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Thu Oct 21, 2010 10:39 am
Posts: 4028
Location: Sitting at my computer
Amy, DoaQ and Amber....I wish we had a "like" button cuz I'd be wearing that thing out.

Amber, I'm gonna extend your last comment.....Everyone is entitled to their opinion....even if it's wrong!!!

_________________
Be kind to yourself. Our character defects do NOT define who we are!


Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 21, 2012 12:54 am 
Offline
Long Time Member
Long Time Member
User avatar

Joined: Sat May 01, 2010 3:46 pm
Posts: 461
Location: South Florida
Is hessler another fake account? Seems too cray-cray to be real...


Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 21, 2012 12:18 pm 
Offline
Long Time Member
Long Time Member

Joined: Sun Mar 27, 2011 9:45 pm
Posts: 833
ladder- it is quee-1959 down to 8mg. hi Queenie

_________________
Humor is one of the best qualities in life of intelligents breeze1.wmv utube untitled 26 (2) utube just me and my music


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 51 posts ]  Go to page 1, 2, 3  Next

All times are UTC - 5 hours [ DST ]


Who is online

Users browsing this forum: No registered users and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Our Sponsors
Suboxone Forum latest topics RSS feed Subscribe to the entire forum
 

 

 
Fond Du Lac Psychiatry
Dr. Jeffrey Junig, M.D., Ph.D.

  • Board Certified Psychiatrist
  • Asst Clinical Professor, Medical College of Wisconsin

Powered by phpBB® Forum Software © phpBB Group